The result of changes in the blood's nitrogen-containing substances, or porphyrins.
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To improve the health and well-being of individuals and families impacted by porphyria. Offering education, advocacy, support services and research.
UK support organization for people with any of the seven variants of porphyria.
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs.
GPAC is an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. UK.
The mission is to present an up to date approach to the understanding of porphyria.
Provides peer support, education and assists with patient advocacy for all types of porphyria.
A database of missense variants associated with the acute hepatic porphyrias.
A site that provides information about the symptoms and diagnosis for the rare disease Acute Intermittent Porphyria (AIP).
Porphyria news, research, advancements and community. Research opportunities related to porphyria and rare disease.
The BBC reports on whether King George III had porphyria.
(July 13, 2004)
Provides peer support, education and assists with patient advocacy for all types of porphyria.
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs.
Porphyria news, research, advancements and community. Research opportunities related to porphyria and rare disease.
A site that provides information about the symptoms and diagnosis for the rare disease Acute Intermittent Porphyria (AIP).
UK support organization for people with any of the seven variants of porphyria.
GPAC is an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. UK.
To improve the health and well-being of individuals and families impacted by porphyria. Offering education, advocacy, support services and research.
A database of missense variants associated with the acute hepatic porphyrias.
The mission is to present an up to date approach to the understanding of porphyria.
The BBC reports on whether King George III had porphyria.
(July 13, 2004)
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