World-wide umbrella organisation. Aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers.

Providing specialist advice and support for spina bifida and hydrocephalus across England, Wales and Northern Ireland.

Information, current news, research grants and discussion forum. National organization.

Voluntary health agency dedicated to education, advocacy, research and service. Has a presence in more than 125 communities nationwide.

Educates and supports those affected, and strives to prevent this birth defect. includes programs, activities and membership information.

Contact information for national office, family support services and fundraising.